As primary caregiver for her 14-year-old grandson, Pamela Brown has made all the decisions about his medical care since he was an infant. She has authorized doctors to perform several lifesaving surgeries over the years to treat his hydrocephalus, a condition in which fluid fills the brain, and to provide physical therapy for his cerebral palsy. No one has ever questioned her authority, but Brown has always had a nagging feeling that it could happen one day and she’d have no recourse because she’s not his legal guardian. On Thursday, Brown’s worries melted away after she consulted with attorneys in a medical-legal partnership program launched last week at Texas Children’s Hospital.
Read the full article by Renée Lee.